Don’t get confused with all the various prostate cancer terms and drugs. The following resources can help you with these. You can also find these links in the Resources section of this website.
PCF has updated it’s 2019 Patient Guide. Compiled with the contributions of top-tier doctors and researchers in prostate cancer, it is a must-have resource for patients and families. It focuses all of the information available about contemporary prostate cancer research, treatment, and lifestyle factors into one consolidated document.
Get it HERE.
So you’ve had your PSA test, and it came back high. Your doctor did a DRE and ran a few more tests, and assures you that prostate cancer is very unlikely. Still, you’re worried. What are some other causes of a high PSA?
Read about this in the Prostate Care Foundation blog HERE
Dr. Mark Scholz participated in a tumor board session with a discussion of Prostate Cancer Cases at El Camino Hospital in November 2017.
- Robert Sinha, MD, Medical Director of Radiation Oncology
- Frank Lai, MD, Urological Oncologist/Robotic Surgeon, El Camino Hospital
- Steven Kurtzman, MD, Radiation Oncologist, Director of Prostate Brachytherapy, El Camino Hospital
- Shane Dormady, MD PhD, Medical Director of Oncology, El Camino Hospital
- Mark Scholz, MD, Medical Oncology, Director of Prostate Cancer Specialists, Founder of Prostate Cancer Research Institute
View the recording of the event here
The Prostate Cancer Patient Guide, available from pcf.org is a useful and a must-have resource for prostate cancer patients, loved ones, or caregivers.
Download it from the pcf.org web site here
A Short Course in Prostate Cancer – eBook
The purpose of this short eBook is to provide men facing prostate cancer with a lot of up-to-date information in a compact format.
The information and opinions provided in this book are not specific medical advice for any individual. It should not substitute for medical advice from a healthcare professional. The author is not a medical doctor. The reader is advised that any information or opinions expressed or implied in this book are those of a layman and should not be acted upon without the consent of a licensed physician. This book is not meant to be used, nor should it be used, to diagnose or treat any medical condition. For diagnosis or treatment of any medical problem, consult your own physician.
Download the pdf ebook here.
Risk Assessment systems are not intended to replace individualized clinician-patient decision making, but rather to provide a straightforward instrument for facilitating disease risk classification in clinical decision making and in future research.
The classification developed by D’Amico and colleagues is one of the most widely used and is a good starting point for risk assessment. This system uses PSA level (blood test), Gleason grade (microscopic appearance of the cancer cells), and T stage (size of the tumor on rectal exam and/or ultrasound) to group men as low, intermediate, or high-risk.
Low-risk: PSA less than or equal to 10, Gleason score less than or equal to 6, and clinical stage T1-2a
Intermediate risk: PSA between 10 and 20, Gleason score 7, or clinical stage T2b
High-risk: PSA more than 20, Gleason score equal or larger than 8, or clinical stage T2c-3a
Limitations: Does not account for multiple risk factors
Read more and access the risk assessment calculator here on the UCSF site
The following information was obtained from several sources including University of British Columbia, The Vancouver Sun and others.
John Oliffe, head of Men’s Health Research and a professor in the School of Nursing has developed a new interactive website called “If I Were Tom” (ifiweretom.ubc.ca)
This website has been five years in the making. The idea started in 2012, when researchers surveyed health specialists and patients to find out what they most want to discuss when dealing with prostate cancer. Another two years of video interviews followed, using a $400,000.00 grant from the Canadian Institutes of Health Research. There are 30 videos on the website, with more ready to be swapped in order to keep everything fresh.
The website is interactive, so the viewer can predict what Tom (actor Gary Johnston plays the role) will do at each step along the way from diagnosis to recovery. “Will I have to wear these stupid underpants that make you look like you’re walking around with a load in your pants?” Tom asks himself when worrying about potential side effects of surgery.
“We’ve found with guys that if a character resonates with them they’re drawn into the content in a more interactive way. You look at the video and put in what you would do next. You might be plotting what Tom’s doing, but chances are you’re plotting what you did or think you’d do,” said Oliffe.
Like a support group session, but on line. There is already a mountain of information available about prostate cancer, concedes Oliffe, and the website isn’t trying to duplicate that. Instead, each topic area includes a video from specialists including urologist, oncologist and psychologist and also includes men with prostate cancer talking about their real experiences. It also includes no-holds-barred discussion on sexual problems and hormonal changes.
We’re really trying to create a resource that was similar for all those guys who don’t want to go to a group because of privacy issues or who can’t get there because of transportation or work commitments etc.
You can’t have too much information. There are different types of prostate cancer – slow growing or aggressive – there are various treatment options to treat prostate cancer including surgery to remove the prostate gland surgically.
Another option may be radiation therapy, anti-hormone treatment known as androgen deprivation therapy or doing something referred to as active-surveillance (where you and your PSA etc. are watched very closely and if and when things change then treatment options are offered). Age and other health problems will also play into each man’s choice of treatment.
“They might be disappointed with the outcome, but if you go in knowing the potential side effects and having thoughtfully considered those, taking time rather than being rushed…you’re less likely to make a decision quickly about a treatment you might regret.”
Research continues. Oliffe’s team is collecting more data through the website with surveys. I believe at the present time they are asking about a persons exercise regime.
Following a prostate cancer diagnosis, patients are faced with a multitude of care options, the advisability of which is influenced by patient factors and by cancer severity or aggressiveness. The ability to categorize patients based on cancer aggressiveness is invaluable for facilitating care decisions.
Accordingly, these guidelines for the management of localized prostate cancer are structured first, to provide a clinical framework stratified by cancer severity (or risk group) to facilitate care decisions and second, to guide the specifics of implementing the selected management options.
In Scope: active surveillance, observation/watchful waiting, prostatectomy, radiotherapy, cryosurgery, high intensity focused ultrasound (HIFU) and focal therapy.
Out of Scope: Secondary or salvage treatment for localized prostate cancer that persists or recurs after primary definitive intervention, and primary treatment of locally advanced/metastatic disease.